Collaboration Details

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Title of Collaborative Activity:

Registry of Patient Registries (RoPR) Project

Description of Collaborative Activity:

The Agency for Healthcare Research and Quality (AHRQ) is working to design and deploy Registry of Patient Registries (RoPR), which will create a searchable central listing of patient registries in the United States that will be integrated with As part of this project, broad consultations were carried out with relevant groups. Staff of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) participated extensively in these consultations.

Type of Collaborative Activity:

Committee, Advisory Group, or Work Group

Year the Collaborative Activity Originated:


NIH Participating Institutes/Centers/Office of the Director:


HHS Agency Collaborators on this Activity: