Collaboration Details

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Title of Collaborative Activity:

Registry of Patient Registries (RoPR) Project

Description of Collaborative Activity:

The Agency for Healthcare Research and Quality (AHRQ) is working to design and deploy Registry of Patient Registries (RoPR), which will create a searchable central listing of patient registries in the United States that will be integrated with ClinicalTrials.gov. As part of this project, broad consultations were carried out with relevant groups. Staff of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) participated extensively in these consultations.

Type of Collaborative Activity:

Other

Year the Collaborative Activity Originated:

2010

NIH Participating Institutes/Centers/Office of the Director:

NIDDK, NLM

HHS Agency Collaborators on this Activity:

AHRQ