Collaboration Details

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Title of Collaborative Activity:

Congenital Heart Disease Expert Meeting

Description of Collaborative Activity:

The goal of this CDC-sponsored meeting was to develop a public health research agenda for congenital heart disease. An NHLBI representative participated on the committee with CDC members that planned and oversaw the meeting. Fifty invited experts attended the meeting representing diverse expertise in content (congenital heart disease, adult heart disease, statistics), methods (public health strategies), and personal experience. The group included persons from varied backgrounds (physicians, surgeons, epidemiologists, public health officials, advocates, and patients), with a broad representation of public health, professional, and Congenital Heart Disease (CHD) advocacy organizations. The meeting focused on four specific areas including epidemiology, health services, long term morbidity and mortality, and long term psychosocial and neurodevelopmental outcomes. The findings from the meeting were summarized in a manuscript which will be published in a cardiology or public health journal.

Type of Collaborative Activity:

Meeting/ Workshop

Year the Collaborative Activity Originated:


NIH Participating Institutes/Centers/Office of the Director:


HHS Agency Collaborators on this Activity: