Biennial Report of the Director

Appendix G: Catalog of Disease Registries, Databases, and Biomedical Information Systems

Project/Resource Title Admin IC Funding ICs Institution
3D Atlas & Database o fMurine Urogenital Development NIDDK NIDDK Medical Research Council
3D Domains NLM NLM NLM
3D Slicer Registration Case Library NIBIB NIH Roadmap (NIBIB, NINDS, NHLBI, NIGMS, OD) Brigham and Women's Hospital
Adult Acute Liver Failure Study Group (ALFSG) NIDDK NIDDK University of Texas
AFINITI - An Augmented System for Neuroimaging Followup NLM NLM MethodistHospitalResearchInstitute
Alaska Native Stroke Registry NINDS NINDS Alaska Native Tribal Health Consortium
Alcohol Policy Information System (APIS) NIAAA NIAAA CDM Group, Inc.
Algorithm and genome-wide database of functional siRNAs NHGRI NHGRI/NLM Cellecta, Inc.
ALTBIB: Bibliography on Alternatives to the Use of Live Vertebrates in Biomedical Research and Testing NLM NLM NLM
Alzheimer’s Disease Neuroimaging Initiative (ADNI) NIA NCRR, NIA, NIBIB, NIMH, NINDS, NINR University of California, San Francisco
Alzheimer's Disease Patient Registry (ADPR) NIA NIA Group Health Cooperative
Alzheimer's Disease Patient Registry (ADPR) NIA NIA Mayo Clinic College of Medicine, Rochester
Analysis and Annotation of the E. coli Genome Sequence NIGMS NIGMS University of Miami School of Medicine
Andrean Global Health Informatics Research and Training Center FIC FIC, OD Universidad Peruana Cayetano Heredia
Antidepressants, Concurrent Treatments, and
Completed Suicide in VA Registry Data
NIMH NIMH University of Michigan at Ann Arbor
AphasiaBank: A Shared Database for the Study of
Aphasic Communication
NIDCD NIDCD Carnegie-Mellon University
Asia-Pacific HIV Observational Database (APHOD) NIAID NIAID, NCI, NICHD Foundation for AIDS Research
Aspergillus Genome Database NIAID NIAID, NCBB Stanford University
Audiological and Genetic Resource for Pediatric Hearing Research NIDCD NIDCD Children's Hospital of Philadelphia
Autism Genetic Resource Exchange (AGRE) NIMH NIMH, NICHD Autism Speaks, Inc.
Automated System To Monitor Medical Device Safety NLM NLM Brigham and Women's Hospital
Baseline Microdata for Analysis of U.S. Demographic Change NICHD NICHD University of Minnesota Twin Cities
Beta Cell Biology Consortium (BCBC) NIDDK NIDDK Multiple
Biodefense and Emerging Infections Research Resources Repository (BEI) NIAID NIAID ATCC
Bioisis NCI NCI Berkeley National Laboratory
Biological Biochemical Image Database (BBID) NIA NIA NIA
Biological Magnetic Resonance Data Bank NLM NLM University of Wisconsin Madison
Biomedical Informatics Research Network (BIRN) Data Repository NCRR NCRR University of California, San Diego
Biomedical Informatics Research Network (BIRN) Data Repository NCRR NCRR University of California, San Diego
Biomedical Research Informatics for Global Health Training (BRIGHT) Program FIC FIC University of California San Diego
Biomedical Translational Research Information System (BTRIS) CC CC NIH Clinical Center
Biospecimen Research Database NCI NCI NCI
Breast and Colon Cancer Family Registries NCI NCI Multiple
Breast Cancer Information Core (BIC) NGHRI NGHRI NHGRI
Breast Cancer Surveillance Consortium NCI NCI Multiple
Building and Validating Location Proteomics Databases NIGMS NIGMS, NIBIB Carnegie-Mellon University
CADD Group Chemoinformatics Tools and User Services NCI NCI NCI
California Health Interview Survey NCI NCI UCLA Center for Health Policy ResearchExternal Web Site Policy, the California Department of Public Health, and the California Department of Health Care Services.
California Parkinson's Disease Registry NIEHS NIEHS Multiple
Cancer Chromosomes NCI, NML NCI, NLM NCI, NML
Cancer Control P.L.A.N.E.T. NCI NCI NCI
Cancer Genetics Network NCI NCI Massachusetts General Hospital, a Harvard Medical School teaching affiliate
Cancer Genome Anatomy Project (CGAP) NCI NCI NCI
Cancer Intervention and Surveillance Modeling Network (CISNET) NCI NCI NCI
Cancer Prevalence and Cost of Care Projections NCI NCI NCI
Cancer Research Network NCI NCI NCI
Cancer Survivor Prevalence Data NCI NCI NCI
Cancer Trends Progress Report NCI NCI NCI
Candidate-gene Association Resource (CARe) NHLBI NHLBI Broad Institute
Cardiac Arrest and Trauma Registry NHLBI NHLBI University of Washington
Cardiac Atlas Project: Establishment of a Cardiac MRI Database NHLBI NHLBI, NIGMS University of Auckland
Cardiovascular Research Grid (CVRG) NHLBI NHLBI Johns Hopkins University
Carolina Mammography Registry NCI NCI University of North Carolina Chapel Hill
CCASAnet: Caribbean, Central and South America Network NIAID NIAID Vanderbilt Univ School of Med
Center for Collaborative Genomic Studies on Mental Disorders NIMH NIMH Washington University in St. Louis, Rutgers University, University of Southern California
Center for International Blood and Marrow Transplant Research  (CIBMTR) NCI NCI, NHLBI, NIAID Medical College of Wisconsin & National Marrow Donor Program
Center for Zebrafish Chromatin and Epigenetics NICHD NICHD University of Utah
Central NIDDK Repository for Biosamples and Data NIDDK NIDDK NIDDK
Chemical Carcinogenesis Research Information System (CCRIS) NCI NCI NCI
Chemical Effects in Biological Systems NIEHS NIEHS NIEHS
Classification of Laws Associated with School Students NCI NCI NCI
Clinical Outcomes Research: An Endoscopic Data Base NIDDK NIDDK Oregon Health and Science University
Clinical Trials Dissemination Library NIDA NIDA Washington University
Clinical Trials Public Data Share Website NIDA NIDA The EMMES Corporation NLM NLM NLM
Clone Registry NLM NLM NLM
CNV (Copy Number Variation) Atlas of Human Development OD NICHD Emory University
Cochrane Collaboration Cam Field: Resource For Research AT AT University of Maryland Baltimore
Cochrane Collaboration Cam Field: Resource For Research NCCAM NCCAM University of Maryland Baltimore
Cohort Registry of Type 1 Diabetes NIDDK NIDDK University of Wisconsin Madison
Collaborative Islet Transplant Registry (CITR) NIDDK NIDDK EMMES Corp.
Collaborative Studies on Genetics of Alcoholism (COGA) Database NIAAA NIAAA SUNY Downstate Medical Center
Colorectal Cancer Mortality Projections NCI NCI NCI
COMBINE (Combining Medications and Behavioral Interventions) Data Set NIAAA NIAAA NIAAA
Community Epidemiology Work Group (CEWG) NIDA NIDA NIDA
Comparative Toxicogenomics Database (CTD) NIEHS NIEHS/NLM Mount Desert Island Biological Lab
Completion of Human Embryo Sections On DVDs NICHD NICHD Louisiana State Univ HSC New Orleans
Comprehensive database of drug discrimination and self-administration research NIDA NIDA King's College London; and University of Texas Health Science Center, Houston
Computational Genotyping System for Improved Influenza Surveillance NLM NLM University of Nebraska Omaha
Computer Access to Research on Dietary Supplements (CARDS) Database OD/ODS OD/ODS OD/ODS
Computer-assisted functional neurosurgery NIBIB NIBIB Vanderbilt University
Computer-based Patient Provider Communication About CAM Use NICHD NICHD Transcendent International, LLC
Consensus Coding Sequence Regions (CCDS) Database NLM NLM NLM
Conserved Domain Architecture Retrieval Tool (CDART) NLM NLM NLM
Continued Development of Stanford Microarray Database NHGRI NHGRI Stanford University
Coordinating and Bioinformatics Unit for the AMDCC/MMPC (Animal Models of Diabetic Complications Consortium/ Mouse Metabolic Phenotyping Centers) NIDDK NIDDK Medical College of Georgia
Core Database of Interacting Proteins (DIP) NIGMS NIGMS University of California, Los Angeles
Creating a Biomarker Registry for Secondary Data Collections NIA NIA, NICHD, NLM University of Michigan at Ann Arbor
Creating A Developmental Gene Expression Atlas for Rhesus Macaque Brain NINDS NINDS, NIMH Allen Institute for Brain Science
Creation of A Marine Natural Products Library To Enhance Life Science Research NCCAM NCCAM Florida Atlantic University
CRW Project: A Comparative Database of RNA Molecules NIGMS NIGMS University of Texas Austin
DAIDS HIV/OI/TB Therapeutics Database NIAID NIAID Gryphon Scientific, LLC
Data Management and Coordinating Center (DMCC) NINDS ORDR University of South Florida
Database for Modified Nucleotides, Fluorophors and Additives NIGMS NIGMS DNA Software, Inc.
Database of Expressed Sequence Tag records (dbEST) NLM NLM NLM
Database of Functional SNPs in Cancer-Related Environmentally Responsive Genes NCI NCI, NIEHS Yale University
Database of Genome Survey Sequences (dbGSS) NLM NLM NLM
Database of Genotypes and Phenotypes (dbGaP) NLM NLM NLM
Database of Longitudinal Studies NIA NIA NIA
Database of Major Histocompatibility Complex (dbMHC) NLM NLM NLM
Database of Single Nucleotide Polymorphisms (dbSNP) NLM NLM NLM
Databases and Data Models Enabling Neuroinformatics NIMH NIMH, NIA, NIAAA, NIBIB, NICHD, NIDA, NIDCR, NINDS, NLM Weill Medical College of Cornell University
Development of a National Incompatible Kidney Transplant Registry NIDDK NIDDK, NLM, OD Johns Hopkins University
Development of a Pediatric Mylelodysplastic Syndrome Patient Registry NIDDK NIDDK Children's Hospital Boston
Development of A Research-Ready Pregnancy and Newborn Biobank In California NICHD NICHD Sequoia Foundation
Development of a Web-based Data Retrieval System for HIV Therapy Guidance NIAID NIAID Monogram Biosciences, Inc.
Development of an Infertility Family Registry (IFRR) NICHD NICHD Dartmouth College
Development of NIAAA Correlational Database NIAAA NIAAA Genome Exploration, Inc.
Development of the Mouse Cochlea Database NIDCD NIDCD, NCI, NIA, NIAAA, NIBIB, NICHD, NIDA, NIMH, NLM University of Minnesota Twin Cities
Development of the Pediatric IBD Behavioral Health Registry NICHD NICHD, NIDDK, NIMH Rhode Island Hospital (Providence, RI)
Development of the Information Resource NIGMS NIGMS Purdue University West Lafayette
Developmental and Reproductive Toxicology Database (DART) NLM NLM NLM
Diabetes Genome Anatomy Project (DGAP) NIDDK NIDDK NIDDK
Diabetic Foot and Pressure Ulcer Databank NLM NLM, NIAMS New York University School of Medicine
Diazeniumdiolate Database NCI NCI NCI
Dietary Supplement Ingredients Database OD/ODS OD/ODS, FDA, CDC, NIST OD/ODS
Dietary Supplements Labels Database NLM NLM NLM
DIRLINE (Online Directory of Health Organizations) NLM NLM NLM
DNA Polymerase Database NIGMS NIGMS New England Biolabs, Inc.
Early Detection Research Network (EDRN) NCI NCI Multiple
East Africa IEDEA Regional Consortium NIAID NIAID Indiana University
East African Network for Informatics Training FIC FIC, NHGRI Regenstrief Institute
EM Open Connectome Project NIBIB NIBIB Johns Hopkins University (subcontract to Harvard)
Enhancements To A Human Embryo, Serial-Section Database NLM NLM Louisiana State Univ HSC New Orleans
Enhancing the JaxMice Database Resource NLM NLM Jackson Laboratory
ENRICH project in Colombia FIC FIC University of Pittsburgh
Entrez Gene NLM NLM NLM
Entrez Genome NLM NLM NLM
Entrez Nucleotide NLM NLM NLM
Entrez PopSet NLM NLM NLM
Entrez Protein NLM NLM NLM
Entrez Taxonomy NLM NLM NLM
Environmental Polymorphisms Registry (EPR) NIEHS NCRR NIEHS NCRR Integrated Laboratory Systems, Inc., University of North Carolina
Ethnomed Knowledge Management Grant NLM NLM University of Washington
Eukaryotic Pathogen Database Resources (EuPathDB) NIAID NIAID Strategies WDK
Extended Thermodynamic Database for Modified Oligonucleotides NIGMS NIGMS DNA Software, Inc.
FaceBase: A Resource for Craniofacial Researchers NIDCR NIDCR University of Iowa; and University of Pittsburgh
Finding Cancer Statistics NCI NCI NCI
FITBIR (Federal Interagency Traumatic Brain Injury Research) Informatics System NINDS NINDS, DOD NIH CIT
FLYBASE: A Drosophila Genomic and Genetic Database NHGRI NHGRI Harvard University
Food Attitudes and Behavior Survey Project NCI NCI NCI
Geisha, A Chicken Embryo Gene Expression Resource NICHD NICHD University of Arizona
Gene Expression Database for Mouse Development NICHD NICHD Jackson Laboratory
Gene Expression Nervous System Atlas (GENSAT) NINDS NINDS Rockefeller University
Gene Expression Nervous System Atlas (GENSAT) NLM NLM NLM
Gene Regulation E. coli Database Integrated Modeling NIGMS NIGMS Center for Genomic Sciences
GeneNetwork NIAAA NIAAA University of Tennessee Health Sciences Center
Genetic Association Database NIA, CIT NIA, CIT National Institutes of Health
Genetic Toxicology Databank (GENE-Tox) NLM NLM EPA
Genetically Altered Animal Models Related to Heart, Lung, Blood, or Sleep NHLBI NHLBI NHLBI
Genetics Home Reference NLM NLM NLM
Genomic Database for Candida Albicans NIDCR NIDCR, NIAID Stanford University
Genomic Database for the Yeast Saccharomyces NHGRI NHGRI Stanford University
Genomic Datasets for Cancer Research NCI NCI NCI
Genomics and Bioinformatics Software Tools NCI NCI NCI
GEO (Gene Expression Omnibus) NLM NLM NLM
Geographic Information System for Breast Cancer Studies on Long Island NCI NCI Multiple
Glycomics/Legacy Informatics Resources for Glycomics NIGMS NIGMS Massachusetts Institute of Technology
Grid-Enabled Measures NCI NCI NCI
Haz-Map: Occupational Exposure to Hazardous Agents Database NLM NLM NLM
HBV (Hepatitis B Virus) Research Network Database Protocol and Clinical Trial Study Proposals NIDDK NIDDK University of California, Los Angeles
Health Disparities Calculator (HD*Calc) NCI NCI NCI
Health Information National Trends Survey NCI NCI NCI
Health Services and Sciences Research Resources (HSRR) NLM NLM NLM
Health Services Research Projects in Progress (HSRProj) Database NLM NLM NLM
Health Services/Technology Assessment Text (HSTAT) NLM NLM NLM
Hereditary Causes of Nephrolithaisis and Kidney Failure NIDDK NIDDK Mayo Clinic Rochester
Historical Elder Abuse Data & Annotated Bibliography NLM NLM University of Iowa
HIV/SIV Database and Analysis Unit NIAID NIAID NIAID
HIV-1/SIV Antibody Neutralization Assay Improvements and Database Development NIAID NIAID Monogram Biosciences, Inc.
HomoloGene NLM NLM NLM
Household Products Database NLM NLM NLM
Human "Brain Bank" Tissue for Alcohol Research NIAAA NIAAA University of Sydney
Human Biological Data Exchange NIDDK NIDDK National Disease Research Interchange
Human Nutrition Research and Information Management (HNRIM) Database NIDDK NIDDK NIDDK
Human oral Microbiome Database (HOMD) NIDCR NIDCR The Forsyth Institute
Images from the National Library of Medicine NLM NLM NLM
ImmPort NIAID NIAID Northrup Grummon
Immune Epitope Database and Analysis Program NIAID NIAID La Jolla Inst for Allergy & Immunology
Infectious Disease Genomics and Bioinformatics Training in Brazil FIC FIC University of Georgia
Influenza Research Database NIAID NIAID Northrup Grummon Health IT, J. CraigVenter Institute; VecnaTechnologies; SAGE Analytica,Los Alamos National Laboratories
Influenza Virus Resource NLM NLM NLM
Informatics Training Program in India FIC FIC Vanderbilt
Information Resources for Radiation Science NCI NCI National Council On Radiation Protection & Measurements
Integrated Risk Information System (IRIS) NLM NLM EPA
Integrating Data, Models, and Reasoning in Critical Care NIBIB NIBIB Massachusetts Institute of Technology
Interactive Craniofacial Normative Database (Phase II) NIDCR NIDCR Praxis, Inc
Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS) NHLBI NHLBI University of Alabama at Birmingham
International Bibliographic Information on Dietary Supplements (IBIDS) Database OD/ODS OD/ODS, USDA OD/ODS
International epidemiologic Database to Evaluate AIDS (West Africa) Core NIAID NIAID, NCI, NICHD University of Bordeaux II
International Epidemiologic Databases to Evaluate AIDS (IEDEA) in central Africa (Region 9) NIAID NIAID, NCI, NICHD Research Triangle Institute
International Mouse Strain Resource (IMSR) NLM NLM Jackson Laboratory
International Network and Registry for Thrombotic Microangiopathy (TMA NIDDK NIDDK Feinstein Institute for Medical Research
International Neuroinformatics Coordinating Facility (INCF) AT AT
International Registry of Werner Syndrome NCI NCI, NIA University of Washington
International Research Registry Network for Sjögren’s Syndrome NIDCR NIDCR, NEI University of California, San Francisco
International Skeletal Dysplasia Registry NICHD NICHD Cedars-Sinai Medical Center
International Toxicity Estimates for Risk (ITER) NLM NLM TERA
Kaiser Permanente Autoimmune Disease Registry NIAID NIAID, NIAMS, NIDDK, OD Kaiser Foundation Research Institute
Knowledge-Based Resource for Linking Animal Models To Human Disease OD/ORIP OD/ORIP Princeton University, Oregon Health and Science University
LactMed (Drugs and Lactation Database) NLM NLM NLM
Large Databases of Small Molecules - Drug Development Tool and Public Resource NCI NCI NCI
Library of Standardized Patient Registry Questions for Rare Diseases NLM NLM, OD University of South Florida
Limited Access Datasets from NIMH Clinical Trials NIMH NIMH NIMH
Linking Data Sources from the Autism Genetic Resource Exchange (AGRE) with NDAR NIMH NIMH, NICHD Autism Speaks, Inc.
LONI (Laboratory of Neural Imaging) Image Data Archive NIBIB NIBIB University of California, Los Angeles
Malaria Research Resources NLM NLM NLM
Medicinal Plants of Antiquity: a Computerized Database NCCAM NCCAM Smithsonian Institution
Molecular Imaging and Contrast Agent Database (MICAD) NCI,NLM CF NLM
Molecular Modeling Database (MMDB) NLM NLM NLM
Monitoring the Future (MTF) NIDA NIDA University of Michigan
Monkey Cortical Connections Database NIMH NIMH, NIA, NIAAA, NIBIB, NICHD, NIDA, NINDS, NLM University of California Davis
MouseCyc: A Biochemical Pathway Database for the Mouse NHGRI NHGRI Jackson Laboratory
Mutant Mouse Resource and Research Centers Informatics, Coordination and Service Center OD/ORIP OD/ORIP UC Davis
Nanomaterial Registry NIBIB NIBIB, NIEHS, NCI RTI International
National Addiction & HIV Data Archive Program NIDA NIDA University of Michigan
National Cancer Image Archive NCI NCI NCI
National Database for Autism Research (NDAR) NIMH NIMH NIMH
National Endoscopic Database of the Clinical Outcomes Research Initiative NIDDK NIDDK Oregon Health and Science University
National Epidemiologic Survey on Alcohol and Related Conditions (NESARC) NIAAA NIAAA NIAAA
National Health and Alcohol Study (NHAS) NIAAA NIAAA NIAAA
National Health and Nutrition Examination Survey NCI multiple National Center for Health Statistics(NCHS), Centers for Disease Control and Prevention (CDC)
National Health Interview Survey  (CDC) AT AT
National Health Interview Survey - Cancer Control Supplement NCI NCI, CDC National Center for Health Statistics(NCHS), Centers for Disease Control and Prevention (CDC)
National Information Resource on Ethics & Human Genetics NHGRI NHGRI Georgetown University
National Longitudinal Alcohol Epidemiologic Survey (NLAES) NIAAA NIAAA NIAAA
National NeuroAIDS Tissue Consortium NIMH NIMH NIMH
National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE) NEI NEI NEI
National Registry for Myotonic Dystrophy and Facioscapulohumeral Dystrophy Patients and Family Members NHLBI NIAMS, NINDS University of Rochester, NY
National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC) NHLBI NHLBI, NIAMS RTI International
National Resource for Postmortem Brain Research NIMH NIHM, NINDS McLean Hospital - Harvard Medical School
NCBI Biosystems Database NLM NLM NLM
NEIBANK: EST Analysis and Bioinformatics for Ocular Genomics NEI NEI NEI
Neuroimaging Informatics Tools and Resources Clearinghouse (NITRC) NIBIB NIBIB, NCCAM, NCRR, NEI, NIA, NIAAA, NICHD, NIDA, NIDCD, NIDCR, NIEHS, NIGMS, NIMH, NINDS, NINR, OBSSR Turner Consulting Group, Inc.
NeuroQOL: Quality of Life Outcomes Instrument for CNS Diseases NINDS NINDS Northwestern University Feinberg School of Medicine
NIA Genetics of Alzheimer's Disease Data Storage Site NIA NIA Washington University in St. Louis
NIA Primate Aging Database NIA NIA University of Wisconsin, Madison
NIBIB-RSNA (Radiological Society of North America) RadLex Ontology NIBIB NIBIB Radiological Society of North America (RSNA)
NIDA Center for Genetics Research NIDA NIDA Rutgers University, with subcontract to Washington University at St. Louis
NIDCD National Temporal Bone, Hearing, and Balance Pathology Resource Registry NIDCD NIDCD Massachusetts Eye and Ear Infirmary
NIDDK Biosample Repository NIDDK NIDDK Fisher Bioservices
NIDDK Data Repository NIDDK NIDDK RTI International
NIDDK Genetics Repository NIDDK NIDDK Rutgers University
NIEHS Chemical Effects in Biological Systems (CEBS) Knowledge Base NIEHS NIEHSNIEHS
NIH AIDS Research and Reference Reagent Program NIAID NIAID Fisher BioServices
NIH Blueprint Neuroscience Information Framework NIDA NIDA University of California, San Diego
NIH Human Embryonic Stem Cell (hESC) Registry OSP/OD OSP/OD OSP/OD
NIH Pediatric MRI Data Repository Clinical Coordinating Center NICHD NIDA, NIMH, NICHD Washington University
NIH Pediatric MRI Data Repository Data Coordinating Center NIMH NIDA, NIMH, NICHD McGill University/ Neurovision
NIH Stem Cell Data Management System NINDS NINDS NIH Stem Cell Unit; NINDS Division of Intramural Research
NIH Tetramer Core Facility NIAID NIAID, NCI Emory/Yerkes
NIMH Genetics Repository NIMH NIMH Washington University in St. Louis
NIMH HIV Brain Bank - National Coordinating office (NCO) NIMH NIMH Emmes Corporation
NINDS Common Data Elements NINDS NINDS KAI Research, Inc.
NINDS Human Genetics Resource Center NINDS NINDS Coriell Institute
NINDS/UC Davis NeuroMab Hybridoma Facility NINDS NINDS, NIMH, OD, ORDR University of California, Davis
North American AIDS Cohorts Collaboration on Research and Design NIAIDNIAID Johns Hopkins University
Nuclear Receptor Signaling Atlas NIDDKNIDDK NIDDK
Observational Antiretroviral Studies In Southern Africa (OASIS) Collaboration NIAID NIAID University of Berne, Switzerland
Online Mendelian Inheritance In Animals (OMIA) NLMNLM NLM
Online Mendelian Inheritance In Man (OMIM) NLM NLM NLM
Osteoarthritis Initiative (OAI) Data Coordination Center NIAMS NIBIB, NIA, NCCAM, NIDCR, ORWH, NIMHD University of California, San Francisco
PACEmaker & Beta-Blocker Therapy Post-Myocardial Infarct NHLBI NHLBI Northwestern University at Chicago
Parkinson’s Disease Data Organizing Center [PD-DOC] NINDS NINDS University of Rochester
PathoSystems Resource Integration Center (PATRIC) NIAID NIAID Virginia Bioinformatics Institute
Pathway Interaction Database Support NCI NCI NCI
PaVE-Papillomavirus Bioinformatics Resource NIAID NIAID NIH
Pediatric Cardiomyopathy Registry NHLBI NHLBI University of Miami School of Medicine
Pediatric Imaging, Neurocognition, and Genetics (PING) NIDANIDA University of California, San Diego
Peptidome NLM NLM NLM
Pharmacogenetics and Pharmacogenomics Knowledge Base (PharmGKB) NIGMS NIGMS, NHGRI, NLM Stanford University
PhenoGen NIAAA NIAAA University of Colorado, Denver
Plan for Extracting Intraoperative Anesthesia Data to the ACS NSQIP Database NLM NLM American College of Surgeons
Population Database for the United States in 1880 NICHD NICHD University of Minnesota
Prevention of Renal Damage in Primary Hyperoxaluria NIDDK NIDDK Mayo Clinic Rochester
Profiles in Science NLM NLM NLM
Project MATCH Data Base NIAAA NIAAA University of Connecticut Health Center
Prostate Cancer Prevention Trial (PCPT) Biorepository NCI NCI Southwest Cooperative Oncology Group (SWOG)
Prostate, Lung, Colorectal and Ovarian Cancer (PLCO) Biorepository NCI NCI NCI
Prostate, Lung, Colorectal and Ovarian Cancer (PLCO) Biorepository NCI NCI NCI
Protein Clusters NLM NLM NLM
Protein Data Bank DOE, NIGMS, NLM, NSF, NCRR, NINDS, NCI, NIBIB Rutgers, the State University of New Jersey; University of California, San Diego
Public HIV Drug Resistance Database NIAID NIAID Stanford University
Public Use Data On Mexican Immigration NICHD NICHD Princeton University
PubMed Centra NLM NLM NLM
Pubmed/Medline NLM NLM NLM
Radiation Event Medical Management NLM NLM NLM
Rapid Research Notes Archive NLM NLM NLM
Reference Image Database to Evaluate Response (RIDER) NCI NIBIB MSKCC, MDACC, University of Washington, Duke, University of Michigan
Registry and Surveillance for Hemoglobinopathies NHLBI NHLBI CDC
Registry Study of Parkinson's Disease in Denmark NIEHSNIEHS, NINDS University of California, Los Angeles
RepBase Update-a Database of Repetitive Sequences NLM NLM Genetic Information Research Institute
Repository for Molecular Brain Neoplasia Data (REMBRANDT) NCI, NINDS NCI NCI
Research Resource for Complex Physiologic Signals NIGMS NIGMS, NIBIB Beth Israel Deaconess Medical Center
Restriction Enzyme Database (REBASE) NLM NLM New England Biolabs, Inc.
Retrovirus Epidemiology Study II (REDS II) NHLBI NHBLI Westat
Rheumatoid Arthritis in African Americans Registry NIAMS NIAMS University of Alabama at Birmingham
Salivary Gland Molecular Anatomy Project NIDCR NIDCR NIDCR
Salivary Proteome Wiki Project NIDCR, CIT NIDCR, CIT NIH
Sea Urchin Genome Database (SpBase) NICHD NICHD California Institute of Technology
Secure Web-Based Intake And Tracking Tools For Cam Research And Clinical Practice AT AT, LLC
SEER-Medicare Data NCI NCI NCI
SEER-Medicare Health Outcomes Survey Linked Database NCI NCI NCI
Selenium and Vitamin E Cancer Prevention Trial (SELECT) Biorepository NCI NCI Southwest Cooperative Oncology Group (SWOG)
SenseLab: Integration of Multidisciplinary Sensory Data NIDCD NIDCD, NINDS Yale University
Sequence Read Archive (SRA) NLM NLM NLM
Severe Chronic Neutropenia International Registry NIAID NIAID University of Washington
Shared Database for the Study of Phonological Development NICHD NICHD Carnegie-Mellon University
Shared Distributed Learning for Developing Medical Informatics Capacity in Africa FIC FIC University of KwaZulu Natal
Shwachman-Diamond Syndrome International Registry and Repository NIAID NIAID, NICHD Fred Hutchinson Cancer Research Center
Small Area Estimates for Cancer Risk Factors & Screening Behaviors NCI NCI NCI
Spatially Oriented Database for Digital Brain Images NIA NIA, NIHM University of Pennsylvania
State Cancer Profiles NCI NCI, CDC NCI
Structural Biology Information Resources NLM NLM NLM
Surveillance, Epidemiology and End Results (SEER) NCI NCI NCI
Surveillance, Epidemiology and End Results (SEER) NCI NCI NCI
The Cancer Imaging Archive (TCIA) NCI NCI NCI
The Manhattan HIV Brain Bank NIMH NIMH, NINDS Mount Sinai School of Medicine
The United States Immunodeficiency Network, (USIDNET) NIAID NIAID Immune Deficiency Foundation
Tobacco Use Supplement to the Current Population Survey NCI NCI U.S. Census Bureau
Toxics Release Inventory NLM NLM EPA
TOXLINE (Toxicology Literature Online) NLM NLM NLM
Trace Archive NLM NLM NLM
Trace Assembly Archive NLM NLM NLM
Transcriptional Atlas of Human Brain Development NIMH NIMH, NINDS, NIDA Allen Brain Institute, Yale University, University of Southern California
Translational Informatics for Global Health in Argentina FICFIC, NLM Oregon Health & Sciences University
Transporter Classification Database (TCDB) NIGMS NIGMS, NIAID, NIBIB, NLM University of California, San Diego
Trauma-Related Database NIGMS NIGMS Massachusetts General Hospital
UMLS (Unified Medical Language System) NLM NLM NLM
UMLS-Based Archive System for Digital Resources NLM NLM Johns Hopkins University
UniProt Protein Sequence and Function Knowledgebase NHGRI NHGRI, NCRR, NIDCR, NIGMS, NIMH, NLM European Molecular Biology Laboratory
UniSTS (Unified Sequence Tagged Sites) NLM NLM NLM
United States Renal Data System (USRDS) NIDDK NIDDK NIDDK
User-Friendly System Dynamics Analysis Tools For Translational Mind-Body Research AT AT DYNADX Corporation
Utility of a New Database to Study Drug Safety during Pregnancy NICHD NICHD Brigham and Women's Hospital
VectorBase (Invertebrate Vectors of Human Pathogens) NIAID NIAID NIAID
Virus Pathogen Resource (ViPR) NIAID NIAID Northrup Grummon Health IT, J. CraigVenter Institute; VecnaTechnologies
Wireless Information System for Emergency Responders (WISER) NLM NLM NLM
Wisconsin Registry for Alzheimer Prevention: Biomarkers of Preclinical AD NIA NIA University of Wisconsin, Madison
Xenbase: a Xenopus Model Organism Database NICHD NICHD, NHGRI University of Calgry
XNAT Open Source Informatics for Imaging Research NIBIB NIBIB Washington University
ZFIN: The Zebrafish Model Organism Database NHGRI NHGRI, NICHD, NIDDK, NIGMS University of Oregon