Collaboration Details

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Title of Collaborative Activity:

Structured Data Capture Forms and Common Data Element Working Groups

Description of Collaborative Activity:

This working group designed a Structured Data Capture (SDC) form and Data Element structure, as well as developed XML artifacts and an implementation guide. Provided expertise on ISO 11179 and 19763-13. We participated in a connectathon with CDC and FDA in 2015, and are monitoring activity ongoing. The 2016 connectathon is testing version 2 for the form design, we intend to realign our forms to enable transformation between NCI forms and SDC forms once the standard is stabilized.

Type of Collaborative Activity:

Committee, Advisory Group, or Work Group

Year the Collaborative Activity Originated:


NIH Participating Institutes/Centers/Office of the Director:


HHS Agency Collaborators on this Activity: